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Starting with a complicated pregnancy, baby Sunny was born at 39 5/7 weeks gestation. The pregnancy was complicated by polyhydramnios and only two vessels in the placenta cord.
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Baby Sunny was diagnosed with chromosome 7 microduplication, tracheoesophageal fistulas, type 2 laryngeal cleft, atrial septal defect (ASD), ventricular septal defect (VSD), and patent ductus arteriosus (PDA).
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Baby Sunny needed a surgery to close the fistula between her trachea and esophagus. With this tunnel connecting the two organs, Sunny's ability to eat and breathe are extremely impaired and dangerous.
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Because there is a defect in the septal wall between both the atria and ventricles, Baby Sunny must have surgery to close the holes. A patch is used to prevent back flow between atria and ventricles.
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Nutrition is poor due to the recovery from the tracheoesophageal fistula. Baby Sunny has a G/J tube placed to supply total enteral nutrition as well as administer medications.
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Baby Sunny developed a second tracheoesophageal fistula that must be repaired. The connection is again closed between the trachea and esophagus.
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Baby Sunny needed this surgery to repair the laryngeal cleft palate that she was born with. This surgery recontructed the larynx to remove the cleft.
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This is the final tracheoesophageal fistula repair for Baby Sunny. The fistula was repaired using a slide tracheoplasty, which essentially prevents more fistulas to form.
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During the final repair of the tracheoesophageal fistula, Baby Sunny had a patent ductus arteriosus (PDA) ligation. This surgery closes off the connection between the aorta and pulmonary artery using sutures at each end to tie it off.
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Because the VSD and ASD opened, they again closed it with patches.
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Because the father is unavailable to help with cares, it is necessary to designate a second person as a care provider. The mother's younger sister has agreed to learn the different cares associated with a trach/home ventilator and to become the second care provider.
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Baby Sunny had a tracheostomy placed to aid in breathing and to set up a home ventilator. She will go home soon with the home vent.
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The landlord will not comply with the electrical updates needed to support the home ventilator. Mother may have to look for a new apartment.
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Team will hold a discharge meeting with mom to go over independent cares and determine any extra teaching needs before discharge.
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Mother will sign lease today and move in on Oct. 1. This new apartment will support the elecrtical needs of the home ventilator.
