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Link text A model statute, intended for adoption in every jurisdiction. This law provided the legal foundation upon which human organs and tissues can be donated for transplantation by execution of a document of gift. Deemed a person's legal consent to donate before death sufficient under the law (without an indication that the consent was no longer valid).
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Link text June 13, 1978—Amended the Social Security Act (End-Stage Renal Disease Program—Improvements) to provide for coverage under Medicare for end stage renal disease patients to receive kidney transplantation services.
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Link text October 19, 1984—Provided for the establishment of the Task Force on Organ Transplantation, authorized the Secretary of Health and Human Services to make grants for organ procurement organizations, created the Organ Procurement and Transplantation Network (OPTN) to be run by contract by the Secretary of Health and Human Services, created the Scientific Registry of Transplant Recipients.
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Link text November 16, 1990—Provided for the establishment and maintenance of a National Bone Marrow Donor Registry. This law made other amendments to existing procurement and transplantation authorities.
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Link text September 8, 1994—Issued and published in the Federal Register proposing a regulation governing the operation of the Organ Procurement and Transplantation
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Link text Federal Register Notice was issued on November 13, 1996 (61 Fed. Reg. 58158)—Extended comment period for the OPTN Notice of Proposed Rulemaking and announced a public hearing on issues raised by the proposed regulation.
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Link text Organ Donor Leave Act passed by Congress to allow federal employees to receive paid leave and serve as living organ or marrow donors.
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Link text November 29, 1999—Delayed the effective date of the OPTN final rule and made related amendments.
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Link text December 17, 1999, Section 413—Delayed the effective date of the OPTN final rule.
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Link text Children’s Health Act, approved October 17, 2000—Title XXI, Amended NOTA to require the OPTN to consider special issues concerning pediatric patients and organ allocation.
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Link text April 5, 2004—Expanded authorities of NOTA to include the authority to establish a grant program to provide reimbursement of travel and subsistence expenses for living organ donors and expanded other grant authorities.
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Link text A model statute intended for adoption in every jurisdiction. This model law legally bars others from revoking the consent of a donor after death who legally registered as a donor during his or her lifetime (without an indication that the consent was no longer valid)
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Link text December 21, 2007—Clarified that paired donation, as defined in the act, is not considered valuable consideration for purposes of Section 301 of NOTA; requires annual report that details the progress towards understanding the long-term health impacts of living donation.
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Link text October 14, 2008—Establishes authority for the Department of Health and Human Services to issue a National Medal honoring organ donors.