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Big Sister!
Patient's big sister is born! She is the first baby born into this family. -
He Is Born!
Patient is born in Virgnia Beach! He is the second baby born to mom and dad. -
Parents Divorce!
Patient's parents divorce and the kids live with mom fulltime. -
New Beginnings!
Mom marries patient's stepdad! -
Baby Brother!
Baby brother is born to mom and stepdad! He is the first baby born in their marriage, baby number three to mom. -
Heart Transplant!
Patient undergoes orthotopic heart transplant in Michigan related to history of restrictive cardiomyopathy, despite having no family history of cardiomyopathy. -
Twins!
Twins are born! Mom and stepdad are blessed with a boy and a girl, babies 2 and 3 in their marriage. -
Wisconsin Here We Come!
The patient and his family move to Wisconsin! After years of moving from Michigan to Connecticut to Iowa, the family has found their niche in the Dairyland! -
New Relationship!
Patient begins relationship with his current girlfriend! -
Graduation!
Patient graduates high school! -
Back To the Hospital!
Patient is admitted to the hospital once again. He has been experiencing chronic progressive polyneuropathy of unknown etiology over the past eight years and has lost 45lbs in the last year. He also has been experiencing hypoxia, diffuse weakness, and respiratory insufficiency over the past two months which brought him to the hospital. Numerous tests and labs are drawn to find the cause of his weakness and chronic progressive neuropathy but none showed any indications of etiology. -
Intubated!
Patient's respiratory function declines and he experiences hypercarbia (pCO2 85) and hypoxia with sleeping SpO2 at 84% and 4 RPM. So an ETT is placed and he must be mechanically ventilated. Patient's mom, stepdad, and siblings visit daily, but his father (who lives in Minnesota) has not been involved in patient's care. However, patient's paternal grandparents are involved, as well as his maternal grandparents.
